Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF.

Dear Chairman Bjorkman and Members of the Committee on Labor and Commerce: On behalf of the people living with cystic fibrosis in Alaska, we write to express our support for SB 133, which makes ...

Help make CF stand for Cure Found. Give Once Give to a Walker Other Ways to Give ...

People with CF have unique concerns related to sexual and reproductive health. These include questions about the following topics and more: Puberty: In the past, people with CF often reported delayed ...

The Alabama Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.

Cystic fibrosis is often described as an invisible battle — one that many people don’t understand unless they’ve lived it or loved someone who has. It’s a genetic condition that demands daily ...

For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

Grampions are adults 50+ who want to join the fight and help those living with CF lead full, productive lives. Join this growing community to find connection, support, and volunteer opportunities.

The International Journal of Neonatal Screening, an international, peer-reviewed journal focused on newborn screening and medicine, published Cystic Fibrosis Newborn Screening: A Systemic ...

BETHESDA, Md. (April 2, 2025) — The Cystic Fibrosis Foundation issued the following statement in response to recent mass reductions in force across federal science agencies: The Cystic Fibrosis ...

WASHINGTON, D.C. (April 1, 2025) — In February, the Offices of Personnel Management (OPM) and Management and Budget (OMB) issued a memo directing agencies to draft plans for large-scale ...

On Tuesday, April 1, a coalition of 23 patient groups representing millions of people with serious health conditions issued a statement urging caution around disruptions to critical safety-net ...