News

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How CF Shaped My Relationships With Others
Cystic fibrosis is often described as an invisible battle — one that many people don’t understand unless they’ve lived it or loved someone who has. It’s a genetic condition that demands daily ...
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Navigating the Realities of Adult Life With CF
When I was first diagnosed with CF, I wasn’t supposed to live past the age of 8. Then Trikafta gave me the chance for a future I wasn’t prepared for. I’ve built a new life for myself and learned to ...
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International Journal Publishes Recommendations for CF Newborn Screening
The International Journal of Neonatal Screening, an international, peer-reviewed journal focused on newborn screening and medicine, published Cystic Fibrosis Newborn Screening: A Systemic ...
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CF Foundation Responds to Mass Reductions in Force Across the FDA and NIH
BETHESDA, Md. (April 2, 2025) — The Cystic Fibrosis Foundation issued the following statement in response to recent mass reductions in force across federal science agencies: The Cystic Fibrosis ...
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Patient Groups Urge Caution Around Disruptions to Critical Safety-Net Programs
WASHINGTON, D.C. (April 1, 2025) — In February, the Offices of Personnel Management (OPM) and Management and Budget (OMB) issued a memo directing agencies to draft plans for large-scale ...
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CF Foundation Invests Up to $2.3 Million to Develop Test for Lung Infections
The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis. The Cystic ...
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Navigating My Son’s Sudden Pancreatitis
As I sat in the genetic counselor’s office just one month into being a new mom, I found myself wishing I would’ve paid closer attention to the biology unit on Punnett squares in high school. “OK, so I ...
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Raising a Child With Cystic Fibrosis
Our story begins in October 2023. As a well-seasoned mom, I gave birth to my third child and finally felt all the love, joy, and excitement to have my baby in my arms. What I didn’t know at the time ...
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CF Foundation Comments on Draft Guidance on the Use of Medical-Grade Pulse Oximeters
In a letter to the U.S. Food and Drug Administration, the Cystic Fibrosis Foundation responded to the agency’s draft guidance entitled “Pulse Oximeters for Medical Purposes — Non-Clinical and Clinical ...
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Congress: Keep the Care in Healthcare
Cystic fibrosis has drastically changed in a single generation. Once seen as a pediatric disease, people with CF are now living into adulthood thanks to groundbreaking treatments and highly ...