Objective Spinal muscular atrophy (SMA) is a neuromuscular disorder that manifests with motor deterioration and respiratory complications. The paradigm of care is shifting as disease-modifying ...

Sample size modifications potentially offer improved information on how specific interventions may be applied, for instance, in the ... youth and parents in the design process may ensure consent and ...

All caregivers and nurses were informed of their confidentiality and signed a Free and Informed Consent form. ... depression and emotional well-being obtained pre – and post-intervention for our ...

WASHINGTON, March 11, 2025 /PRNewswire/ -- AARP commends the reintroduction of the Credit for Caring Act, legislation that would provide financial relief to eligible working family caregivers. The ...

Use of Kinship Care Agreements. The use of kinship care agreements (KCA) is consistent with the purpose of the act to support the safety, security and well-being of children by providing services ...

Metro Schools has received about 27,000 completed parent consent forms so far, representing about 40% of the student population. Of the parents who have returned the forms, 99% have given consent ...

NOTE: The University IRB abides by information regarding the current position of the VHA Office of Research & Development’s (per email from Karen Jeans dated 01/03/14) related to use of Craigslist as ...

Homing in on informed consent may be the key to changing that, with the welcome side effect of empowering patients to participate in their medical care. Experts: To improve trial diversity, start ...

Like caregivers across the country, Sarah Rasby of Nebraska had to make financial and emotional sacrifices to take care of her 35-year-old twin sister, Erin Lewis, who went into cardiac arrest and ...

For individuals under 18 and not coming to our events with an accompanying adult, we require compulsory consent from a parent or guardian for them to attend the event. Like you, we are horrified by ...