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Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF.
Help make CF stand for Cure Found. Give Once Give to a Walker Other Ways to Give ...
Cystic fibrosis is often described as an invisible battle — one that many people don’t understand unless they’ve lived it or loved someone who has. It’s a genetic condition that demands daily ...
For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...
The International Journal of Neonatal Screening, an international, peer-reviewed journal focused on newborn screening and medicine, published Cystic Fibrosis Newborn Screening: A Systemic ...
BETHESDA, Md. (April 2, 2025) — The Cystic Fibrosis Foundation issued the following statement in response to recent mass reductions in force across federal science agencies: The Cystic Fibrosis ...
WASHINGTON, D.C. (April 1, 2025) — In February, the Offices of Personnel Management (OPM) and Management and Budget (OMB) issued a memo directing agencies to draft plans for large-scale ...
The Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis. The Cystic ...
Our story begins in October 2023. As a well-seasoned mom, I gave birth to my third child and finally felt all the love, joy, and excitement to have my baby in my arms. What I didn’t know at the time ...
In a letter to the U.S. Food and Drug Administration, the Cystic Fibrosis Foundation responded to the agency’s draft guidance entitled “Pulse Oximeters for Medical Purposes — Non-Clinical and Clinical ...
Cystic fibrosis has drastically changed in a single generation. Once seen as a pediatric disease, people with CF are now living into adulthood thanks to groundbreaking treatments and highly ...
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