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Ehlers-Danlos can be complicated to diagnose, and there’s no cure — but patients can manage the condition with pain medications and physical therapy. Share this article Written by Julia Ries ...
A group of young patient-researchers is showing that patient-led research can be indispensable in the effort to crack complex, long-misunderstood illnesses, like hypermobile Ehlers-Danlos syndrome.
Lena Dunham says she is living with Ehlers-Danlos syndrome after she was ... About 90% of EDS patients suffer from chronic pain, which may require medication, physical therapy to prevent ...
Acer Therapeutics’ Edsivo™ (celiprolol) granted FDA Breakthrough Therapy designation for vascular Ehlers-Danlos Syndrome. News release. Acer Therapeutics Inc. April 4, 2022. Accessed April 5 ...
Multidisciplinary strategies combining physical and psychological strategies were the most effective for patients with hypermobility spectrum disorders or Ehlers-Danlos syndrome, according to a ...
Lina Ahnberg was recently diagnosed with Ehlers-Danlos syndromes (EDS), a group of rare, inherited conditions that cause very flexible joints and stretchy, fragile skin.
Vascular Ehlers-Danlos syndrome (vEDS). About 1 in every 100,000-200,000 people are born with this kind of EDS. It affects the network of blood vessels in your body, weakening them and making your ...
Patient with Ehlers-Danlos syndrome arrived in a wheelchair, walked out after surgery McLaren Greater Lansing Imagine having so much pain in your lower back that it robbed you of your ability to walk.