News

Depending on when the symptoms start determines a person’s life expectancy ... Ohio is one of only a handful of states that test for Krabbe disease during the newborn exam, which Paige says ...
Wisconsin's newborn screening program took the first step toward adding Krabbe disease to a list of nearly 50 disorders the state already screens for at birth. At least ten other states already ...
Their youngest daughter, Jalyn, was diagnosed with Krabbe Disease, a rare ... Jalyn’s Grandfather. “People in this area and these families, it’s amazing what they’ll do, and most time ...
The goal is to improve outcomes of children identified with, or at risk for, Krabbe Disease. To achieve this goal, the institute established in 2006 the NYS Krabbe Consortium, a multidisciplinary ...
After an MRI, CT scan, and a genetic test, Victoria was diagnosed with Krabbe disease, a rare disorder that affects the central and peripheral nervous systems. Though there is a treatment ...
The distribution of diagnosed leukoencephalopathies was as follows: metachromatic leukodystrophy 62, X-linked adrenoleukodystrophy 60, Krabbe disease 39, Canavan disease 16, Alexander disease 13 ...