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Mum doctors called ‘lanky’ shares journey with rare condition causing long limbs and hollow face
“I try to change my face by having fillers because I can see I have Marfan syndrome and I don’t want other people to see it, I just wanted to look normal. “I always tell my daughter she’s ...
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New tech helps women living with Marfan syndrome to deal with pregnancy risks
At 27, she lives with Marfan syndrome, a genetic disorder that affects the connective tissues that hold organs in place. An eye appointment as a teenager led to the diagnosis. “I thought I had ...
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Effectiveness of ACE inhibition in patients with Marfan's syndrome on β-blockade
The standard treatment for the connective tissue disorder Marfan's syndrome (MFS) is β-blockade, aimed at reducing aortic wall stress. Angiotensin II type 1 and 2 receptors (AT 1 and AT 2 ...
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Walk for Victory benefiting Marfan Foundation held at TY Park
The event was hosted by Local 10 News Anchor Kristi Krueger. About one in every 5,000 people have Marfan syndrome, a genetic disorder that affects the connective tissues that hold organs in place.