A school-aged child died at a Texas hospital where they were receiving treatment for measles, marking the second death of a ...

The goal is to improve outcomes of children identified with, or at risk for, Krabbe Disease. To achieve this goal, the institute established in 2006 the NYS Krabbe Consortium, a multidisciplinary ...

Wisconsin's newborn screening program took the first step toward adding Krabbe disease to a list of nearly 50 disorders the state already screens for at birth. At least ten other states already ...

Methods: 2802 children with suspected progressive intellectual ... X-linked adrenoleukodystrophy 60, Krabbe disease 39, Canavan disease 16, Alexander disease 13, leukoencephalopathy with vanishing ...

Their youngest daughter, Jalyn, was diagnosed with Krabbe Disease, a rare ... re also told don’t put a ceiling on it because every child is different,” said Karla Wolford.